Mainstreaming Medical Care

Beverly Roberts, Director

The Arc of New Jersey's Mainstreaming Medical Care Program promotes quality health care for people with developmental disabilities throughout New Jersey. Click here for the program brochure.

Mainstreaming Medical Care Program hosts another successful and informative conference!

The Arc of New Jersey's 27th Annual Conference on Medical Care for People with Intellectual & Developmental Disabilities - June 3, 2016

On June 3, The Arc of New Jersey's Mainstreaming Medical Care Program hosted its 27th Annual Conference at the Westin in Princeton. The conference is an important opportunity for attendees to learn more about providing quality health care to individuals with intellectual and developmental disabilities. Speakers included DHS Commissioner Connolly, DDD Assistant Commissioner Shea and Division of Medical Assistance and Health Services Director Davey, as well as keynote speaker Dr. Rick Rader.

And a special thank you to all of the contributors and exhibitors that helped make this a very successful conference on medical care.   Recognition Page.



Dual Diagnosis Resources


Crisis Handbook

How to cope when an adult loved one with a developmental disability experiences mental health or behavioral issues.  The purpose of this handbook is to inform and empower families so that they can more effectively advocate for an adult relative with a dual diagnosis during a mental health and/or behavioral crisis.

Family Crisis Handbook

Emergency Quick Reference Guide


Crises are a Family Affair

Lucille Esralew, Ph.D. Clinical Administrator SCCAT & S-COPE, Trinitas Regional Medical Center

In a mental or behavioral health crisis, we all tend to focus on one identified individual.  However, I would like to suggest that this is a limited and not particularly helpful approach because crises affect all members of the family.

For the purpose of our discussion we will follow John, a hypothetical individual, age 24, who receives DDD services and who has an intellectual disability as well as a diagnosis of bipolar disorder. John's mother, Mrs. Smith, is John's primary caregiver and support person. According to our usual thinking and practice, if John has acted unsafely, resulting in his need for crisis services or hospitalization, all services leading up to, during and following hospitalization would focus on John. For the purpose of our review, all members of John's family are affected by events leading up to crisis, during crisis and in the aftermath of a mental health or behavioral emergency.  Read more.


NJ's Crisis Assessment R​esponse and Enhanced Services (CARES) program

Dr. Esralew and her colleagues are in the process of updating the Family Crisis Handbook to include the perspectives of self-advocates, crisis workers, families, and direct service professionals.  The updated Family Crisis Handbook will also include material relevant for children and youth with a dual diagnosis of MI/DD.

Please see the attachment from Dr. Lucy Esralew, Clinical Administrator for NJ's Crisis Assessment R​esponse and Enhanced Services (CARES) program, a statewide program with headquarters at Trinitas Regional Medical Center.  The CARES program specializes in helping persons who are dually diagnosed with a mental illness and a developmental disability (MI/DD).

Several surveys are posted on survey monkey, which can be accessed from the attachment below.  It would be greatly appreciated if the surveys are completed by June 30, 2016. 

Main Flyer about Grant Project


Crisis Response Workers

Consumer Self Advocate

Family Focus Group

Direct Support Professionals

You can help by:

  1. Filling out the appropriate survey
  2. Encouraging staff, consumers and family members to fill out the relevant survey

Past Webinars: Update on Applying for SSI & Medicaid:

~ Part 1 & Part 2 ~


Medicare & Medicaid Webinar:  

The 2016 Medicare Part D Changes for Persons Who Have Both Medicare and Medicaid (The Dual Eligibles)
This webinar is for everyone who wants to know about Medicare Part D for the dual eligibles, including employees of provider agencies serving people with Intellectual and Developmental Disabilities (I/DD), staff from DDD, family members, and health care professionals. The webinar discusses the details of the changes and how they will affect individuals with developmental disabilities who are eligible for both Medicare and Medicaid.


Achived Webinars:

Future Planning Stories from Self-Advocates: Successes, Challenges, and How to Make Your Voice Hear

New Assessment Tool for Persons Who Need Assistance with their Personal Care

Understanding Your Social Security Retirement Benefits: For Parents of Individuals with I/DD

SSI Eligibility

Social Security Resources

Social Security Disability & Work - WHAT'S NEW IN 2016?

From applying for disability, retirement, Medicare or spouses benefits, to obtaining a proof of income letter, changing an address or phone number, getting a replacement Medicare card or a Social Security Benefit Statement, Social Security’s website can save you and your clients a lot of time.

Click here for more information

2016 Red Book Work Incentives Flyer

Income Tax and Your Social Security Benefits, Join the Million! Create your own "My Social Security" Account 

With tax season upon us, many of you have asked about Income Taxes And Your Social Security Benefits. Some people have to pay federal income taxes on their Social Security benefits. This usually happens only if you have other substantial income (such as wages, self-employment, interest, dividends and other taxable income that must be reported on your tax return) in addition to your benefits.     READ MORE


Healthy Times Newsletter

Fall 2015

Summer 2015

Winter 2015



Important Information on the 2016 Medicare Part D Drug Plan Changes for the Dual Eligibles

2016 Medicare Part D Stand-Alone Prescription Drug Plans in New Jersey

Medicare's Quality Care Finder Medicare's Quality Care Finder is a new online resource to help consumers and their loved ones access all of’s comparison tools so they can get information that will help put them in control and feel more confident about the healthcare decisions they make.The Quality Care Finder is a collection of current and tools that make it easy to find health care providers, facilities, suppliers and more in specific geographic areas, and then make “apples-to-apples” comparisons of their quality.

New Jersey Senate Resolution: A Tribute to 50 Years of Medicaid and Medicare

Fifty years ago (July 30, 1965) President Lyndon Johnson signed the law that created Medicaid and Medicare.  In recognition of the 50th anniversary of the establishment of Medicare and Medicaid, the New Jersey Senate passed a Resolution, which was introduced by Senate President Stephen Sweeney and Senate Majority Leader Loretta Weinberg.  The Senate Resolution states, in part that "Medicare and Medicaid have significantly enhanced the lives of individuals throughout the United States, including low-income families, pregnant women, people with disabilities and those in need of long-term care." The Resolution further states that "The strength and success of the State of New Jersey, the vitality of our communities, and the effectiveness of our American society depend, in great measure, upon concerned and dedicated social service programs such as Medicare and Medicaid."

Left to right in first row: Marilyn Askin, AARP; Peg Kinsell, Statewide Parent Advocacy Network (SPAN); Beverly Roberts, The Arc of New Jersey; Senator Loretta Weinberg. Left to right in second row: Dan Keating, Alliance for the Betterment of Citizens with Disabilities (ABCD); India Hayes Larrier, New Jersey Citizen Action; Maura Collingsru, New Jersey Citizen Action; Senate President Stephen Sweeney; and Ray Castro, New Jersey Policy Perspective.

Helpful Information on NJ Medicaid:

The Arc of NJ's Medicaid Eligibility Problem Form: Family members (or staff who are advocating for a family) may use this form to document a problem that a person with an intellectual and developmental disability (I/DD) is having in obtaining NJ Medicaid. 

The Arc of NJ's Medicaid Managed Care Problem Form: Family members or caregiving staff may use this form to document a problem that a person with an intellectual and developmental disability (I/DD) is having in obtaining from the Medicaid managed care plan the necessary medical, dental or behavioral care (including an inability to locate an in-network provider);  prescription medication;  or durable medical equipment or supplies.  

Section 1634 of the Social Security Act - Disabled Adult Child (DAC) flyer: This important flyer, developed by the NJ Department of Human Services, is applicable for persons with a disability who have Supplemental Security Income (SSI).  When the individual's mother or father retires, or if the parent becomes disabled or dies, this flyer describes the process by which the "disabled adult child" (DAC) can continue to receive Medicaid. However, if the process described in this flyer is not followed, the DAC would likely lose Medicaid benefits and, therefore, access to DDD services would also be jeopardized. 

Section 1619(b) of the Social Security Act - SSI and Continued Medicaid Eligibility: This important flyer, developed by the New Jersey Division of Developmental Disabilities, describes the process by which individuals who are employed and are eligible for Supplemental Security Income (SSI) may continue to be eligible for Medicaid coverage when their earnings are too high to continue to receive SSI.

LogistiCare became NJ's medical transportation broker in July 2009 and is now responsible for arranging through its provider network: upper-mode non-emergent Mobility Assistance Vehicles (MAVs), Ambulance service and lower-mode, livery service for Medicaid recipients in all counties. Read More...

Medicaid-Covered Transportation More Than 20 Miles from Home

Medicaid Coverage for "Thick It"

Fact Sheets:
Division of Developmental Disabilities Medicaid Eligibility for the Supports Program

Persons with Intellectual and Developmental Disabilities (I/ HealthDD) Who Have Medicaid and Private Insurance

Updated Fact Sheet on Supplemental Security Income (SSI)

Health Promotion & Resources:

Benefits of Bleach -  The importance of ordinary household bleach as a very potent germ killer

Help Prevent the Flu: A Useful Tool for People with I/DD

Being a Healthy Adult: How to Advocate for Your Health and Health Care - Resource for young adults with developmental disabilities and their families and caregivers.

The ​Care2Caregivers ​program ​provides a variety of free services to caregivers of persons who have dementia.  This program is available to all caregivers  -- including caregivers of persons ​with dementia ​who have intellectual and developmental disabilities (I/DD). Services available from this program include:  Caregiver Resources (e.g., coaching on how to manage difficult behaviors); information on adult medical day programs;  professional resources; peer support; newsletters; and general information and referral. The Care2Caregivers program is operated by Rutgers Behavioral Health Care, through a grant from the NJ Department of Human Services. Phone number: 800-424-2494.


NJ Spotlight article about Care2Caregivers

Health and Wellness Material:

Cancer Screening and Risk Reduction
The Arc of New Jersey and its Mainstreaming Medical Care Program have developed an initiative called Let's Talk About Health, which is a comprehensive effort to develop educational programs and materials that address health care issues of people with developmental disabilities in accesible formats. Projects to date include the following:
Health Screening and Risk Reduction for Breast Cancer
Health Screening and Risk Reduction for Colon Cancer
Health Screening and Risk Reduction for Prostate Cancer

Diabetes Materials
Launched in 2006 with funding from The Horizon Foundation for New Jersey, The Arc of New Jersey’s Diabetes Awareness and Education Project has produced materials intended to educate individuals with developmental disabilities and their caregivers regarding important steps that can be taken toward the prevention and control of Diabetes, including changes in diet and exercise habits and regular monitoring by a health care professional. Read More...

To Order a Copy of the Diabetes Booklet and/or Educational Film, Click Here.

Diabetes Video Guide and Booklet (English Version):
Diabetes Booklet
Video Part 1
Video Part 2

Diabetes Video Guide and Booklet (Spanish Version):
Diabetes Booklet
Video Part 1
Video Part 2

Women's Health Project
Order Form for Women's Health Project Materials

Adult Personal Health Record and Medical History Form
With a grant from the New Jersey Council on Developmental Disabilities, The Arc of New Jersey has developed a new Adult Personal Health Record and Medical History Form, available in both English and Spanish. Completed by a family member or caregiver, the form provides accurate documentation of the most important aspects of a person’s medical history. The original remains with the consumer or caregiver; a copy can be provided to the consumer’s primary health care providers; and copies can be brought when the consumer has other health appointments, such as a clinic or emergency room.
Adult Personal Health Record and Medical History Form: English
Adult Personal Health Record and Medical History Form: Spanish

Health Insurance Through Affordable Care Act (Obamacare):

A Guide to Assist NJ Residents' Selection of Health Insurance Plans: A Resource for Navigators and Community Assisters-  Please note that this information is not applicable for people who are eligible for Medicaid (including persons who receive Medicaid expansion through the federal health care law).

The National Disability Navigator Resource Collaborative has released the first of several fact sheets entitled “Comparing Health Plans’ Benefits and Coverage Summaries.” This fact sheet is intended to inform navigators and other enrollment specialists about what people with disabilities need to look for in the Summary of Benefits and Coverage. Read More...