Mainstreaming Medical Care
Beverly Roberts, Director
The Arc of New Jersey's Mainstreaming Medical Care Program promotes quality health care for people with developmental disabilities throughout New Jersey. Click here for the program brochure.
Current Healthy Times Newsletter:
In this Issue:
- Q and A on New Jersey's Proposal to Require all Dual Eligibles to Enroll in a Medicare Managed Care Plan called "FIDE SNP"
- Crisis Assessment Response and Enhanced Services (C.A.R.E.S.)
- The Special Needs Ambassador Program: A Vehicle for Advocacy, Education and Intervention
- The Arc of New Jersey's 27th Annual Conference on Medical Care for People with Intellectual & Developmental Disabilities - June 3, 2016
- The Arc of New Jersey Family Institute
- If Social Security Denies an Application for SSI, There is an Online Appeals Process
- Important Information for Anyone Receiving SSI and Planning a Vacation Outside of the United States
- Rutgers/Robert Wood Johnson Medical School- The Boggs Center on Developmental Disabilities, New Jersey Partners in Policymaking, Now Accepting Applications
Past Healthy Times Newsletters:
As Summer ends, please reserve a spot on your calendar with these important webinars. Make sure to register today!
Supporting People with I/DD to Identify Appropriate Housing
Thursday, October 6, 2016 from 2:00pm – 3:00pm Eastern Time
There are many options for where adults with intellectual and developmental disabilities (I/DD) could live. Some people with I/DD may live independently, with other family members after they leave their parents’ home, or in a community-based setting with support. It is important to balance the wishes of the person with I/DD and the level of support needed when identifyinghousing options available in your community.
We will focus on how to explore housing options with an adult with I/DD. We will provide tips on important questions to ask the person with I/DD about where he or she wants to live when determining housing options. We will also provide guidance on how the family can work with the person with I/DD to determine supports needed to and housing preferences.
FREE Fall/Winter Health Webinar Series from the Rehabilitation Research & Training Center on Developmental Disabilities and Health
We are excited to present the next series of webinars from the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD).
RRTCDD has made significant contributions to advance research and practice across the lifespan for people with intellectual and developmental disabilities (I/DD) and their families. We hope these webinars will give attendees useful information and strategies to improve health and community participation among people with I/DD.
See the full descriptions at each link, and stay tuned for updates!
All webinars start at 2pm CT (3pm ET) and are 60 minutes long.
WEBINAR 1- September 22, 2016
Racial and Ethnic Disparities Among Adults with I/DD and Their Family Caregivers
Presenter: Sandy Magana
WEBINAR 2- October 20, 2016
Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals with Intellectual and Developmental Disabilities
Presenters: Corina Ronneberg and Lisa Peters-Beumer
WEBINAR 3- January 19, 2017
Healthy Relationships and Healthy Sexuality for People with Developmental Disability
Presenter: Susan Kahan
WEBINAR 4- February 16, 2017
Aging and Dementia Care for People with Intellectual Disabilities
Presenter: Matthew Janicki
WEBINAR 5- March 16, 2017
Transition of Young Adults with Developmental Disabilities to Adult-Systems of Care
Presenter: Kruti Acharya
WEBINAR 6- April 20, 2017
Social Support Networks of Aging Persons with Intellectual Disabilities
Presenter: Lieke van Heumen
Helpful Information on NJ Medicaid:
The Arc of NJ's: Medicaid Eligibility Problem Form: (Recently Revised) Family members and staff who are advocating for a family may use this form to document a problem that a person with an intellectual and developmental disability (I/DD) is having in obtaining NJ Medicaid.
The Arc of NJ's: Medicaid HMO Problem Form Report: Family member and supporting caregivers are urged to use this form if an individual currently has a Medicaid HMO and is having difficulties obtaining a service that would typically be covered through their Medicaid coverage.
Section 1634 of the Social Security Act - Disabled Adult Child (DAC) flyer: This important flyer, developed by the NJ Department of Human Services, is applicable for persons with a disability who have Supplemental Security Income (SSI). When the individual's mother or father retires, or if the parent becomes disabled or dies, this flyer describes the process by which the "disabled adult child" (DAC) can continue to receive Medicaid. However, if the process described in this flyer is not followed, the DAC would likely lose Medicaid benefits and, therefore, access to DDD services would also be jeopardized.
Section 1619(b) of the Social Security Act - SSI and Continued Medicaid Eligibility: This important flyer, developed by the New Jersey Division of Developmental Disabilities, describes the process by which individuals who are employed and are eligible for Supplemental Security Income (SSI) may continue to be eligible for Medicaid coverage when their earnings are too high to continue to receive SSI.
LogistiCare became NJ's medical transportation broker in July 2009 and is now responsible for arranging through its provider network: upper-mode non-emergent Mobility Assistance Vehicles (MAVs), Ambulance service and lower-mode, livery service for Medicaid recipients in all counties. Read More...
Kaiser Health News' consumer columnist Michelle Andrews writes: "Sepsis kills more than 250,000 people every year. People at highest risk are those with weakened immune systems, the very young and elderly, patients with chronic diseases such as diabetes, cancer or kidney disease and those with illnesses such as pneumonia or who use catheters that can cause infections. But it can strike anyone, even a healthy child like Rory." (Andrews, 8/23)
Kaiser Health News columnist Judith Graham writes: "Everything initially went well with Barbara Charnes’ surgery to fix a troublesome ankle. But after leaving the hospital, the 83-year-old soon found herself in a bad way. Dazed by a bad response to anesthesia, the Denver resident stopped eating and drinking. Within days, she was dangerously weak, almost entirely immobile and alarmingly apathetic. “I didn’t see a way forward; I thought I was going to die, and I was OK with that,” Charnes remembered, thinking back to that awful time in the spring of 2015. Her distraught husband didn’t know what to do until a long-time friend — a neurologist — insisted that Charnes return to the hospital." (Graham, 9/1)
The Arc of New Jersey's 27th Annual Conference on Medical Care for People with Intellectual & Developmental Disabilities - June 3, 2016
On June 3, The Arc of New Jersey's Mainstreaming Medical Care Program hosted its 27th Annual Conference at the Westin in Princeton. The conference is an important opportunity for attendees to learn more about providing quality health care to individuals with intellectual and developmental disabilities. Speakers included DHS Commissioner Connolly, DDD Assistant Commissioner Shea and Division of Medical Assistance and Health Services Director Davey, as well as keynote speaker Dr. Rick Rader.
Dual Diagnosis Resources
- How to cope when an adult loved one with a developmental disability experiences mental health or behavioral issues. The purpose of this handbook is to inform and empower families so that they can more effectively advocate for an adult relative with a dual diagnosis during a mental health and/or behavioral crisis.
Crises are a Family Affair
Lucille Esralew, Ph.D. Clinical Administrator SCCAT & S-COPE, Trinitas Regional Medical Center
In a mental or behavioral health crisis, we all tend to focus on one identified individual. However, I would like to suggest that this is a limited and not particularly helpful approach because crises affect all members of the family.
For the purpose of our discussion we will follow John, a hypothetical individual, age 24, who receives DDD services and who has an intellectual disability as well as a diagnosis of bipolar disorder. John's mother, Mrs. Smith, is John's primary caregiver and support person. According to our usual thinking and practice, if John has acted unsafely, resulting in his need for crisis services or hospitalization, all services leading up to, during and following hospitalization would focus on John. For the purpose of our review, all members of John's family are affected by events leading up to crisis, during crisis and in the aftermath of a mental health or behavioral emergency. Read more.
Medicare & Medicaid Webinar:
The 2016 Medicare Part D Changes for Persons Who Have Both Medicare and Medicaid (The Dual Eligibles)
This webinar is for everyone who wants to know about Medicare Part D for the dual eligibles, including employees of provider agencies serving people with Intellectual and Developmental Disabilities (I/DD), staff from DDD, family members, and health care professionals. The webinar discusses the details of the changes and how they will affect individuals with developmental disabilities who are eligible for both Medicare and Medicaid.
- 2016 Medicare Drug Benefit changes for dual eligibles slides PDF
- Navigating Drug Plan Finder Duals slides PDF
Medicare's Quality Care Finder - Medicare's Quality Care Finder is a new online resource to help consumers and their loved ones access all of Medicare.gov’s comparison tools so they can get information that will help put them in control and feel more confident about the healthcare decisions they make.The Quality Care Finder is a collection of current Medicare.gov and HHS.gov tools that make it easy to find health care providers, facilities, suppliers and more in specific geographic areas, and then make “apples-to-apples” comparisons of their quality.
New Jersey Senate Resolution: A Tribute to 50 Years of Medicaid and Medicare
Fifty years ago (July 30, 1965) President Lyndon Johnson signed the law that created Medicaid and Medicare. In recognition of the 50th anniversary of the establishment of Medicare and Medicaid, the New Jersey Senate passed a Resolution, which was introduced by Senate President Stephen Sweeney and Senate Majority Leader Loretta Weinberg. The Senate Resolution states, in part that "Medicare and Medicaid have significantly enhanced the lives of individuals throughout the United States, including low-income families, pregnant women, people with disabilities and those in need of long-term care." The Resolution further states that "The strength and success of the State of New Jersey, the vitality of our communities, and the effectiveness of our American society depend, in great measure, upon concerned and dedicated social service programs such as Medicare and Medicaid."
Health and Wellness Material:
Cancer Screening and Risk Reduction
The Arc of New Jersey and its Mainstreaming Medical Care Program have developed an initiative called Let's Talk About Health, which is a comprehensive effort to develop educational programs and materials that address health care issues of people with developmental disabilities in accesible formats. Projects to date include the following:
Health Screening and Risk Reduction for Breast Cancer
Health Screening and Risk Reduction for Colon Cancer
Health Screening and Risk Reduction for Prostate Cancer
Launched in 2006 with funding from The Horizon Foundation for New Jersey, The Arc of New Jersey’s Diabetes Awareness and Education Project has produced materials intended to educate individuals with developmental disabilities and their caregivers regarding important steps that can be taken toward the prevention and control of Diabetes, including changes in diet and exercise habits and regular monitoring by a health care professional. Read More...
To Order a Copy of the Diabetes Booklet and/or Educational Film, Click Here.
Women's Health Project
Order Form for Women's Health Project Materials
Adult Personal Health Record and Medical History Form
With a grant from the New Jersey Council on Developmental Disabilities, The Arc of New Jersey has developed a new Adult Personal Health Record and Medical History Form, available in both English and Spanish. Completed by a family member or caregiver, the form provides accurate documentation of the most important aspects of a person’s medical history. The original remains with the consumer or caregiver; a copy can be provided to the consumer’s primary health care providers; and copies can be brought when the consumer has other health appointments, such as a clinic or emergency room.
Adult Personal Health Record and Medical History Form: English
Adult Personal Health Record and Medical History Form: Spanish