Mainstreaming Medical Care

The Arc of New Jersey's Mainstreaming Medical Care Program promotes quality health care for people with intellectual and developmental disabilities (IDD) throughout New Jersey. Click here for the program brochure.

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Please enter your contact information below if you want to be added to our growing Listserv, which includes the Healthy Times newsletter. You will receive helpful emails pertaining to healthcare for individuals with IDD, including timely information on aspects of NJ Medicaid, Medicare, and Social Security that have an impact on individuals with IDD.

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Changes and Announcements:

GREAT NEWS! Important NJ WorkAbility legislation signed into law by Governor Murphy! 2022 Update
REGISTER NOW: Free Virtual Film Premiere Saturday, Jan. 8th - Featuring Persons with IDD
LATEST NEWSLETTER: Help from Social Security; Health Insurance Open Enrollment Ends 1/31/22
RECENT COVID UPDATE: Hospital visitation allowed for persons with IDD
STAY INFORMED: Rapid Surge of COVID Cases in New Jersey
UPDATED DEC 2021: Dual Eligibles - General Information, Prescription Medication and D-SNP Fact Sheets
UPDATED DEC 2021: Medicaid Fact Sheet - Types of Medicaid Eligibility in New Jersey
Women's Health Research Study, For Women with IDD - We are looking for women to answer some questions about their experiences when receiving women’s health exams by filling out an online survey. The purpose of this study is to identify gaps, challenges, barriers and experiences for women with IDD in accessing women's healthcare.
Announcement - Division of Developmental Disabilities (DDD) Revises DAC Flyer - 09/2021
Important information from the CDC on both the 2021-22 flu season and COVID-19
Important information for the new year - Beware of Scammers Pretending to be Social Security (Updated August 2021)
Medicaid and Private Health Insurance / for Persons with Intellectual and Developmental Disabilities (I/DD)- Revised 2019
Need to find a physician that makes home visits? American Academy of Home Care Medicine Provider Listing!

Latest Presentations and Webinars:

Medicaid Eligibility w/ Beverly Roberts, Director of Mainstreaming Medical Care at The Arc of NJ

The Medicaid eligibility fireside chat with Beverly Roberts, Director of The Arc of New Jersey's Mainstreaming Medical Care Program and Lisa Ford, Director of The Arc of New Jersey Family Institute.
The 2022 Changes in the Medicare Drug Benefit for People Who Have Both Medicare and Medicaid (the Dual Eligibles)
Navigating The Medicaid Maze
Persons with I/DD Growing Old: Understanding and Supporting Age-Related Health Changes

COVID Archived Webinars and Videos:

Webinar - The Impact of the COVID pandemic on Social Security benefits for persons with IDD, hosted on Tuesday, September 14, 2021 - View Recording | Slides
Informative Video - Understanding COVID-19 Vaccinations for Individuals with Intellectual and Developmental Disabilities (IDD) - Recorded January 15, 2021 - View Video
Webinar - COVID-19 Vaccinations for Individuals with Intellectual and Developmental Disabilities (IDD) in New Jersey - Recorded live on January 11, 2021 - View Recording
Webinar - Up-to-Date Information on the COVID-19 Vaccine - Recorded live on January 6, 2021, speaker Leone Murphy - View Recording

COVID Updates & Information:

RECENT COVID UPDATE Jan 2022: Hospital visitation allowed for persons with IDD
STAY INFORMED: Rapid Surge of COVID Cases in New Jersey
New Jersey's Plan to Rollout the COVID-19 Vaccine - Read full article
COVID-19 Flowchart - What to do if you've been exposed to the virus, for both vaccinated and unvaccinated individuals.
CDC Launches COVID-19 Resources for Individuals with IDD - The Centers for Disease Control and Prevention (CDC) launches a toolkit with information developed to help parents and other caregivers discuss COVID-19 with individuals with intellectual and developmental disabilities (IDD).
Posted Aug. 24, 2021 - Third Dose of COVID-19 Vaccine Available for Immunocompromised, Other COVID Updates
COVID-19, Unemployment Insurance, and People with Disabilities (Fact Sheet) - Prepared by The Arc of the U.S, which has very helpful information for persons with IDD who have received Unemployment Insurance (UI) during the COVID pandemic.
What to do if a disability application is denied - Information from Social Security
Opening of a mass COVID vaccination site in Newark
Clarification: New Jersey's Personal Preference Program (PPP) and "fast track" enrollment process - Posted: August 17, 2020
New Jersey's Personal Preference Program (PPP) is helpful for individuals with IDD - Posted: July 28, 2020
Employees Laid-Off from Their Job Now Have More Time to Sign Up for COBRA - Posted July 21, 2020
How to Obtain Information from Social Security During the COVID-19 Pandemic - Posted: July 14, 2020
COVID-19 and Information from the NJ Department of Banking Insurance - Posted: July 6, 2020
DMAHS Medicaid Communication- NJ FamilyCare/Medicaid guidance during COVID-19 pandemic
Important Information- The economic impact payment for persons with IDD who receives SSI or Social Security benefits, including SSDI, and who is a dependent on someone else's tax return.
COVID-19: Health passport, if person I/DD needs to be hospitalized- Hospital Patient Summary for Person with Developmental Disability with Possible COVID-19
Economic Impact payments for persons with I/DD who receive Social Security, SSI or SSDI benefits- View Article
NJ's COVID-19 Information Hub Symptom check and live updates
The Arc of NJ's COVID-19 Information and Resource Page
Medicaid updates: Telehealth information; Medicaid terminations prohibited during Coronavirus emergency (April 1, 2020)
Office of Civil Rights - Non-discrimination for persons with disabilities during Coronavirus pandemic
MEDICAID TERMINATIONS PROHIBITED DURING CORONAVIRUS EMERGENCY- Federal legislation passed on March 18, 2020 bars all Medicaid terminations during the course of the public health emergency caused by COVID-19. In New Jersey, all Medicaid programs are considered part of NJ FamilyCare. If you were enrolled in Medicaid as of March 18, those benefits must be continued, unless you move out of state or voluntarily request termination, until the last day of the month when this public health emergency is officially ended. If you become aware of anyone whose Medicaid benefits have been terminated during this period, they can contact Legal Services of New Jersey (LSNJ) for help at 1-888-576-5529 or https://lsnjlawhotline.org/. (March 31, 2020)
NJ Health - Guidance on the Contact of a Close or Casual Contact of a Confirmed or Suspected Case of COVID-19 (March 30, 2020)
Important information from the AADMD Coronavirus Center for persons with IDD (March 27, 2020)
The science of why soap, sanitizer and warm water work (March 25, 2020)
Positive Pulse - Coronavirus Info and Safety
Plain language resource from Green Mountain Self Advocates on CoronaVirus. This easy to read booklet about the Coronavirus is from SARTAC. It is in English and Spanish. It was written by and for people with developmental disabilities. (March 24, 2020)
- Plain Language Booklet on Coronavirus
- Spanish Plain Language Booklet on Coronavirus
Positive Pulse (March 23, 2020)
- There's No Place Like Home (PART I)
- There's No Place Like Home (PART 2)
Coronavirus updates: New information from Social Security and the Federal Trade Commission (March 20, 2020)
Social Security Offices- Effective March 17, 2020 Social Security Offices Will Only Offer Phone Service (March 17, 2020)
Prescription Medications - Important Alert: COVID-19 and ensuring access to prescription medications (March 16, 2020)
COVID-19 - Coronavirus Prevention Flyer (March 13, 2020)
Governor Murphy Announces- Efforts to Support Consumer Access to COVID-19 Screening (March 12, 2020)
Coronavirus Testing: The Information Gap (March 12, 2020)
NJ Sick Leave Information- Explainer: Sick Leave Law in NJ (March 12, 2020)
How to Prevent Respiratory Illnesses- Including the Coronavirus

Frequently Requested Fact Sheets & Forms

Accessing DDD services at 21- Fact Sheet
DAC Flyer
FAQ- Dual Eligibles - General Information
FAQ- Dual Eligibles - Prescription Medication
FAQ- Dual Eligibles - Special Needs Plans (D-SNPs)
Medicaid Eligibility Problem Form
Medicaid Problem Form
Non-DAC Fact Sheet
UPDATED DEC 2021: Medicaid Fact Sheet
FAQs on SSI Overpayments
Accessing DDD Services at age 21

Steps to follow when requesting DDD services at 21
How to continue a parent's private health insurance when a child with I/DD is approaching age 26

Fact Sheet

Resources and Information:

Dual Diagnosis Resources

Family Crisis Handbook, Emergency Quick Reference Guide
Dual-EligiblesIndividuals who have both Medicaid & Medicare, see our brand new frequently asked questions (FAQs) on dual eligibles with I/DD - persons who receive both Medicaid and Medicare. Our FAQs are separated into three sections; general Information, Prescription medications and special needs plans (D-SNPs), 2019 Medicare Part D Changes for Dual Eligibles Webinar
Fact Sheets & Flyers

Non-DAC Fact Sheet, Dual Eligibles FAQ Fact Sheets, Accessing DDD Services at 21 Fact Sheet, Medicaid Eligibility Form, Medicaid Problem Form, DAC Flyer, Healthmeet Flu Flyer, SSI & Continues Medicaid Eligibility Flyer
Health Promotion & News Articles

Public health related promotions and newsarticles
Healthy Times Newsletter

Review current and past newsletters
Health & Wellness Material

Let's Talk About Health, a comprehensive & educational program with materials that address health care issues of people with developmental disabilities including Cancer screening information & Diabetes material.
Medicaid Resources

Medicaid Eligibility Form, Medicaid Problem Form, clarification on the PPP program and a parent/guardian being employed to provide the PPP services, Information on NJ Medicaid, Applying for ABD Medicaid as a Disabled Adult Child (DAC), Medicaid-Covered Transportation More Than 20 Miles from Home, Medicaid Coverage for "Thick It"
Medicare Resources

The 2021 Medicare Part D Changes Webinar for Persons Who Have Both Medicare and Medicaid (The Dual Eligibles), Medicare's Quality Care Finder
Archived Annual Conferences

Our conference focuses on providing current, up-to-date healthcare information on individuals with intellectual and developmental disabilities.
Medicaid Problem Forms

Revised Medicaid Eligibility Problem Form and Medicaid Problem Form
Social Security Resources

Fact Sheets, Understanding Supplemental Security Income (SSI) Reporting Responsibilities, Applying for SSI & Medicaid, SSA 2017 Fact Sheets, SSI 2017 NJ Payment Rate Chart, and more.
Webinars

Access current and archived webinars
Spend-down from last year's stimulus payment to Medicaid beneficiaries
The Revised Family Crisis Handbook: A Mental Health, Stabilization, and Wellness Toolkit

Free of cost. This is an extremely valuable resource for individuals with disabilities who have a dual diagnosis, their families, and professional caregivers.
NJTV - 4 part series about the complexities and challenges for individuals with IDD (Series #1)

Dementia in Down syndrome adults causing caregiver crisis
NJTV - 4 part series about the complexities and challenges for individuals with IDD (Series #2)

Is NJ prepared for more developmentally disabled adults living into their senior years?
NJTV - 4 part series about the complexities and challenges for individuals with IDD (Series #3)

Is legal guardianship necessary for adults with developmental disabilities?
NJTV - 4 part series about the complexities and challenges for individuals with IDD (Series #4)

NJ’s most vulnerable residents: Understanding the challenges of a dual diagnosis
Important Information for persons with I/DD who receive SSI or SSDI
New Jersey Launches NJ ABLE Accounts to Help Individuals with Disabilities Save for Expenses

Healthy Times Winter 2018/2019

Inside this edition:

Update on New Jersey's Dual Eligible Special Needs Plans (D-SNPs)
Transition of Health Care - Building a Bridge from Pediatrics to Adulthood
Down Syndrome and Alzheimer's Disease: New Support Group for Families & Caregivers
A Personal Perspective on Down Syndrome and Alzheimer's Disease
Youtube Video from the National Down Syndrome Society
How to Continue a Parent's Health Insurance when a Child with I/DD is Approaching Age 26
"What is a Non-DAC?" Factsheet Update
Social Security Administration Issues a SCAM ALERT
The Arc of New Jersey's 30th Annual Conference on Medical Care, May 31, 2019 - Save the Date!

Looking for previous Healthy Times issues? Click here

31st Annual Conference on Medical Care

for Persons with Intellectual and Developmental Disabilities

Thank you to everyone who joined us on June 10 and 11, 2021 for 31st Annual Conference hosted by The Arc of New Jersey's Mainstreaming Medical Care Program. Held virtually, the conference was attended by health care professionals; staff from agencies providing services for individuals with intellectual and developmental disabilities (IDD); family members; staff from the NJ Division of Developmental Disabilities (DDD); and representatives from Medicaid managed care organizations. The two, half-days (9:00 am to 12:00 noon) featured keynote speakers, 4 workshops and a virtual exhibit hall.

Mainstreaming Medical Care

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Frequently Requested Fact Sheets & Forms

Resources and Information:

Please visit our Annual Conference page for highlights and workshop presentations